FOR INFORMATION AND SUPPORT
We partner with advocacy groups to advance a common mission to improve the lives of people affected by rare genetic diseases of obesity. As these independent organizations are closest to understanding the unique impacts of living with these rare diseases, they are uniquely suited to most effectively address these needs. Working together, we strive to help support their vital work, and provide education and resources to the rare genetic diseases of obesity community.
Below is a list of organizations that may offer support. If you are a member of an advocacy group that is not currently included here and would like to be, please reach out to us at LEADforRareObesity@rhythmtx.com.
- National Organization of Rare Diseases (NORD)
- EveryLife Foundation
- Global Genes
- Obesity Action Coalition (OAC)
A private community
We invite you to join LEAD for Rare Obesity’s private Facebook community, a place to connect with others, share experiences, and ask questions. This is a closed group only open for individuals, friends, and family affected by rare genetic diseases of obesity.